One Step Closer – Blog 57

colon

The last few days have been quite fraught for Dad due to today’s impending Colonoscopy. The whole situation has been draining for him psychologically more than anything else.

He has coped well with the restricted diet, even managing to take to drinking black coffee with relative ease. Black tea has been a no go, though this was expected. Otherwise he has been eating just fish, toast, rice and soup. Quite a healthy diet in some respects.

More than anything though the expectation connected with the taking of an enema and what may or may or not be found, has caused him much worry and to feel uncomfortable.

Three laxatives and two enemas later, we arrived at Xativa Hospital and Dad waited ‘impatiently’ to be called through for the procedure; 45 minutes passed by and it was all over.

The news is technically great though the procedure itself failed. Although they were not able to fully assess the bowel where the suspected issue was, doctors are confident enough that we are no longer dealing with a further tumour.

This means that the Immunotherapy treatment (at this stage) will more than likely be given the go ahead; although we have still not received the full thumbs up yet.

A further scan on Dad’s bowel will be carried out next Wednesday, though this time he will not need to follow a restricted diet and will only need one enema the evening before. They have not said what the scan will be but it sounds like it may be a barium style scan or some other such specialist scan; either way they do not seem unduly concerned, they simply want to get to the bottom (ahem) of what may be happening down there.

It remains to be seen if Valencia will give the go ahead for the Immunotherapy treatment before next week’s second bowel scan, though the Oncologist has said she will let the team know that Colon Cancer is not suspected.

Having left the hospital, you could see Dad’s mood lift; like the weight he has been carrying, has been lifted from his shoulders.

His main concern continues to be his weight loss, especially with regards to his legs which have become very skeletal in their appearance. His arms are not much better and due to the small levels of food being consumed his energy level remains very low.

Due to his tiredness, he also becomes easily agitated and has bouts of grumpiness that would give even the entire cast of ‘Grumpy Old Men’ a run for their money.

To restore a bit of light and positivity, one good news story I have read this week was on February 4th (World Cancer Day).

Immunotherapy is advancing tremendously and trials have been taking place for some time. A patient with what I believe to be just Lung Cancer with no spread to other areas of his body was given just 12-18 months to live. This was 3 years ago! After receiving a trial course of Immunotherapy, he now has NO traces of the disease.

Different results are clearly seen across those that have taken part in past and current trials. However, this is the first time I have read that Immunotherapy has actually cured someone!

I’m not going to get too far ahead of ourselves but rather than believe we are facing the end, I thought for once even whilst the odds may be stacked against Dad, there is still time and there is still a chance that his resilience and fight will pay off.

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Enema of the State – Blog 56

enema

Results from the eligibility tests carried out last week in order for Dad to receive the Immunotherapy ‘go ahead’ are slowly starting to trickle in. The approval news is anxiously being awaited and now more than ever it’s needed. Dad’s mind, which was his last stronghold has started to waiver. The strength of mind he once had is struggling and whilst at times he is able to muster up the energy to put on a show for those around him, the truth be told he is simply shattered all day long and is beginning to question ‘what’s the point?’

Gone are the arguments with him trying to overdo it. He knows himself or at least feels now that he is simply not capable. The hardest part is seeing the emotion. His eyes ‘well up’ at the smallest of things and he is very reflective over life that was and life that could have been. He also has the ‘death look’. No easier way to put it. The colour has gone from his face, he looks very thin, sleeps all day and his eyes are bulging like a baby Gremlin yet with a vacant look about it.

He has no appetite and although the Oncologist has said having no appetite is to be expected, this has not eased his mind any further. He is desperate to eat, just simply doesn’t want to. The weight loss, as a result of not eating is stressing him out. Fortunately, the Oncologist has said that as long as he continues to drink, she is not overly concerned about the lack of food being consumed. The good thing is that he is finally drinking the required amount of fluids and his sodium levels have thankfully stabilised. With Sodium levels at 142 he is no longer having to go for regular top ups, which is a result worth celebrating.

We had hoped that we would have received the approval news for the Immunotherapy by today. When we received a call earlier inviting us to the hospital we hoped that this would be the lift Dad needed. Unfortunately, yet another hurdle was put before him. This time they have been asked by the specialist team at Valencia, who are running the Study Trial, that Dad needs to have a Colonoscopy performed.

Whilst pretty much all eligibility checks have been passed, one of the scans has flagged up a potential issue in Dad’s colon.

At this stage they cannot be certain what the scan is showing, hence the request for the Colonoscopy. There is a chance it is another disease known as Diverticulitis. This itself should be fairly simple to treat (in respect to everything else that is going on). It has also been suggested that it could be that the cancer has spread to this area too.

In preparation for next week’s ‘examination’, his diet will now be restricted. Technically this isn’t really an issue as he barely wants to eat anyway. His allowable foods will be just the following: tea, coffee, filtered juice, non-fizzy pops, soup, fish, rice, toast & hard cheese. He is not even allowed milk, so I can imagine his displeasure when he is served either a black tea or coffee.

In preparation for the Colonoscopy Dad will need an Enema so that tests can achieve a good result with clear visibility. All I would say is that based on how the Enema needs to be administered and the results that should be achieved in just 5 minutes, then none of us truly wants to be present when Dad administers the two 250ml solutions on Tuesday night and Wednesday morning!

The result of the Colonoscopy will also severely impact the Immunotherapy eligibility. If there is a tumour, the Trial will be terminated. This would be an extremely bitter pill to swallow at such a late stage; especially given that the Trial is Dad’s only real chance of a longer life. If it turns out to be a disease, other than a tumour, then the Immunotherapy could still be given the green light.

It’s going be a long few days and the light at the end of the tunnel is not looking very green at this stage.