I left the last blog stating that waiting 2 weeks for the results of the Immunotherapy eligibility felt a little bittersweet given Dad’s current prognosis and health.
Unfortunately, as feared, he did end up in hospital the very next day having collapsed at home; this was last Thursday. We thought sodium levels must have dropped and that the hospital would top up them up as before and that he would be out the following day, giving him the opportunity to live a little more. The collapse though was a little disconcerting.
Sadly, a short hospital visit was not to be. Although the sodium levels were down, he also now had SIADH (Syndrome of Inappropriate Antidiuretic Hormone Secretion). https://en.wikipedia.org/wiki/Syndrome_of_inappropriate_antidiuretic_hormone_secretion.
SIADH is an imbalance in hormone levels causing him to retain fluid. This felt like a cruel joke. We had spent so much time getting him to drink water and now he needed to have none, as his body was unable to flush it out due to the hormonal imbalance.
This also caused a conflict in the doctor being able to treat for the low sodium. They were unable to increase the fallen level until Dad had managed to flush out all the excess fluid he was carrying. Friday arrived and no sodium treatment had yet been given with the medical staff closely monitoring Dad’s fluid balances. The blood tests taken first thing confirmed that his fluid levels were still too high and that the sodium level was now at just 120; lower than it was last week when we took him in. This in turn meant there was no chance he would be coming home today.
By Friday night he had been transferred to a ward on the Oncology floor with Doctors wanting to keep a closer eye on him. They said that he would need to be there for the next 3 or 4 days until things had settled down. Treatment for the sodium level could now start to be given in a very controlled manner and pain killers were also possible with Dad experiencing head aches and shoulder pain.
Saturday morning came and Dad decided he would have a shower to help himself feel brighter. Unfortunately, this had the adverse effect. Having reached the bathroom, he then collapsed for a second time, requiring assistance from the family of the patient next to him. It turned out that his blood pressure had fallen suddenly, causing him to briefly pass out. Thankfully people were around and he was soon attended to and placed back into bed.
Rather than feeling better, he now felt worse than ever, looked worse than ever and was in a terrible state. The Doctors put him on complete bed rest and insisted that he must not get out of bed for anything, not even to sit on the edge of it to eat his dinner.
Anxiously waiting for news, the weekend has felt very long. Dad’s health is at the worst it’s been since his original diagnosis. Having had some further tests on Monday the good news was that his sodium levels had more or less returned to normal despite still being slightly down. The bad news is that the Doctors have indicated that the early results with regards to is faltering blood pressure is that his heart is now weakening. This is made worse for the fact the scan from his original Cancer diagnosis indicated that the tumour was wrapped around his aorta which was why the Cancer was not operable in the first place.
It’s too early to say anything more at this stage. The Doctors are wanting him to remain in hospital with no discharge date mentioned. They want to carry out more extensive tests and whilst he is no longer on strict bed rest, he has orders not to go wandering around on his own as they fear he may collapse again due to how unstable his blood pressure is. This even includes him not being able to toilet alone which itself is not the best of signs.
I guess the best thing I can say is, that he is in the right place. Whilst I know he would prefer to be at home, for now being in hospital is a good thing. Tests can be carried out and he can be observed 24/7. He is also getting 3 meals, 2 snacks, free heating and lots of visitors. Good times.
Finally, whilst the Immunotherapy treatment may not necessarily be a cure, should he be eligible for the trial, it is a chance of an extension to his life. This now, more than ever is hope worth clinging on to.